Privacy Policy

Your privacy

Funding Neuro promises to respect any personal data you share with us, or that we get from other organisations (such as Just Giving) and keep it safe. We aim to be clear when we collect your data and not do anything you wouldn’t reasonably expect. This Privacy Policy describes how we collect and use personal information. If you have any queries about this Privacy Policy, please call us on 0141 530 4424 or email hello@fundingneuro.com. We collect information in the following ways:


When you give it to us directly.

We collect personal information about you when you interact with us (e.g. by phone or online), register with us, enquire about our activities, make a donation, participate in an event, apply to volunteer with us, visit our website or otherwise provide us with your personal information.

When you give information to us indirectly.

Your information may be shared with us by independent event organisers, for example the Edinburgh Marathon or fundraising sites like Just Giving or Virgin Money Giving. These independent third parties will only do so when you have indicated that you wish to support Funding Neuro and with your consent. You should check their Privacy Policy when you provide your information to understand fully how they will process your data.

When you give permission to other organisations to share or information is  publicly available.

We may combine information you provide to us with information available from external sources in order to gain a better understanding of our supporters to improve our fundraising methods, products and services. The information we get from other organisations may depend on your privacy settings or the responses you give, so you should regularly check them. This information comes from the following sources: social media; depending on your settings or the privacy policies for social media and messaging services like Facebook, WhatsApp or Twitter, you might give us permission to access information from those accounts or services.

Information available publicly.

This may include information found in places such as Companies House and information that has been published in articles or newspapers. For more information about this, see “How we update, screen and analyse your information” below.

As we collect it when you use our website or apps.

Like most websites, we use “cookies” to help us make our site – and the way you use it – better. Cookies mean that a website will remember you. They’re small text files that sites transfer to your computer (or phone or tablet). They make interacting with a website faster and easier – for example by automatically filling your name and address in text fields. In addition, the type of device you’re using to access our website or apps and the settings on that device may provide us with information about your device, including what type of device it is, what specific device you have, what operating system you’re using, what your device settings are, and why a crash has happened. Your device manufacturer or operating system provider will have more details about what information your device makes available to us. The type and quantity of information we collect and how we use it depends on why you are providing it.

Where it is appropriate we may also ask for: information relating to your health (for example if you are taking part in a high risk event); why you have decided to donate to us. (We will never make the latter question mandatory, and only want to know the answer if you are comfortable telling us.)

What we do with your information:

  • Send you fundraising information by post, telephone or electronic means. These can include: news and updates about Funding Neuro and occasional targeted requests to consider giving financial support to Funding Neuro.
  • Administer your donation or support your fundraising.
  • Keep a record of your relationship with us.
  • Ensure we know how you prefer to be contacted.
  • Provide you with the services or information you asked for.
  • Profile and research details of you, our supporters. For more information, see “How we analyse your data” below.
  • Tools may be used to monitor the effectiveness of our communications with you, including email tracking, which records when an e-newsletter from us is opened and/or how many links are clicked within the message. The data from this tracking is generally used in an aggregated and anonymised form.
  • We occasionally use external organisations for data cleansing. This is required to complete services including checking for phone numbers that have been registered with the Telephone Preference Service.
  • If you enter your details onto one of our online forms, and you don’t ‘send’ or ‘submit’ the form, we may contact you to see if we can help with any problems you may be experiencing with the form or our websites.
  • Direct Marketing
  • Children’s data. We collect and manage information from children, and aim to manage it in a way which is appropriate to the age of the child. Information is usually collected when children attend our events or fundraise for us.  Where possible and appropriate we will seek consent from a parent or guardian before collecting information about children. Our events have specific rules about whether children can participate, and we‘ll make sure advertising for those events is age appropriate.
How we analyse your data:

We analyse your data to ensure communications are relevant and timely, and to provide an improved experience for our supporters.

Profiling also allows us to target our resources effectively, which you, our supporters consistently tell us is a key priority for you. We do this because it allows us to understand the background of the people who support us and helps us to make appropriate requests to supporters who may be able and willing to give more than they already do. Importantly, it enables us to raise more funds, sooner, and more cost-effectively, than we otherwise would.

When building a profile we may analyse geographic, demographic and other information relating to you in order to better understand your interests and preferences in order to contact you with the most relevant communications. In doing this, we may use additional information from third-party sources when it is available. Examples of where this information comes from could include:

  • Reviewing employment information that you have made publicly available via social media, such as Linkedin;
  • Newspaper articles, publications and company websites;
  • Companies House and other company information databases;
  • Charity Commission and Office of the Scottish Charity Regulator (OSCR) registers;
  • Any other publicly available sources, such as Who’s Who and Debretts.

In this analysis, we may record:

  • A rating of your level of engagement with Funding Neuro, which is gathered from donation history, event attendance and other engagement with Funding Neuro;
  • An estimate of your inclination to give a large gift to the organisation;
  • Provided employment information and professional activities.
  • Only where relevant, selected media coverage.

We make every effort to adhere to Institute of Fundraising guidelines and keep ourselves constantly updated on industry best practices and adjust accordingly. To withdraw your consent for this analysis, please ring 0141 530 4424 or email hello@fundingneuro.com

How can I access the information about me, and correction of information?

You can ask us if we are keeping any personal data about you and you can also request to receive a copy of that personal data – this is called a Subject Access Request. To make a Subject Access Request you will need to provide adequate proof of identity such as a copy of your passport, birth certificate or driving licence before your request can be processed.

Please try to be as clear as possible about the information you are seeking. Once we have received your Subject Access Request, the agreed fee and proof of identity, you will receive a response from us within 30 days and you will be able to get copies of any
information we hold on you. However, exemptions to disclosure may apply in some circumstances.

Subject Access Requests should be sent to:
Funding Neuro
Geason House
145 North Street
Glasgow, G3 7DA
Email: hello@fundingneuro.com

At any time you may request that we delete or correct your personal information. If you wish to correct any information on you held by Funding Neuro simply contact hello@fundingneuro.com. If, upon receipt of your subject access request, you are unhappy with our use of your personal data, you have the right to complain to the Information Commissioner’s Office . We encourage you to contact us in the first instance so we can work with you to resolve any concerns.

Do we provide information to other parties?

We will never sell your data to any third party. We will not share your details with other charities for marketing purposes. We will only share information with other organisations where we have your permission to do so in accordance with this Privacy Policy, where it is necessary for a legitimate reason connected with the services we offer or where it is required by law or regulation. We will use careful and considerate judgement to determine “legitimate reason”, always keeping the interests and proper care of you, our supporters at the centre. If we feel that we are undertaking an action that we should seek consent for, we will do so. If we run an event in partnership with another named organisation your details may need to be shared. We will be very clear what will happen to your data when you register. We use Google Chrome and Drive products, which are multi-tenant cloud services, for our internal office use; this means that internal documents and information which are generated at Funding Neuro are stored in cloud services which are hosted within the EEA.

We may occasionally need to transfer your personal information overseas, for instance to our bulk email distributor, MailChimp. Where this is necessary, this may be to countries or territories around the world.

Data Security

Funding Neuro is committed to keeping your personal information safe and secure and we have security policies and technical measures in place to help protect your information (for example, we require specialist suppliers who process secure payments to comply with PCI DSS standards). Unfortunately, no data transmission over the internet can be guaranteed to be 100% secure. As
a result, while we strive to protect your personal information, Funding Neuro cannot ensure or warrant the security of any information you transmit to us, and you do so at your own risk. As a user you can help protect the integrity of any data you transmit to Funding Neuro by taking common precautions such as regularly allowing patching for your operating system, ensuring you are running up to date and supported anti-virus software, and only transmitting data where HTTPS appears at the beginning of the page URL (this refers to the security technology Secure Sockets Layer (SSL) and indicates that the data is being transmitted securely).

Changes to our privacy notice

We regularly review our privacy notice, and may make changes time to time. Any changes made will be posted to this page, and will apply from the time we post them. This privacy notice was last changed on 5th August 2017.

Funding Neuro

In this Privacy Policy, “Funding Neuro” means Funding Neuro (registered charity in Scotland SC042061), whose offices are at Geason House, 145 North Street, Glasgow G3 7DA.
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